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Facilitating Patient and Public Involvement in basic and preclinical health research

James Maccarthy, Suzanne Guerin, Anthony G. Wilson, Emma R. Dorris
doi: https://doi.org/10.1101/425371
James Maccarthy
1UCD Centre for Arthritis Research, School of Medicine, UCD Dublin, Ireland
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Suzanne Guerin
2UCD School of Psychology, UCD Dublin, Ireland
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Anthony G. Wilson
1UCD Centre for Arthritis Research, School of Medicine, UCD Dublin, Ireland
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Emma R. Dorris
1UCD Centre for Arthritis Research, School of Medicine, UCD Dublin, Ireland
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  • For correspondence: emma.dorris@ucd.ie
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Abstract

Involving patients in research broadens a researcher’s field of influence and may generate novel ideas. Preclinical research is integral to the progression of innovative healthcare. These are not patient-facing disciplines and implementing meaningful PPI can be a challenge. A discussion forum and thematic analysis identified key challenges of implementing PPI for preclinical researchers. In response we developed a “PPI Ready” planning canvas. For contemporaneous evaluation of PPI, a psychometric questionnaire and an open source tool for its evaluation were developed. The questionnaire measures information, procedural and quality assessment. Combined with the open source evaluation tool, researchers are notified if PPI is unsatisfactory in any of these areas. The tool is easy to use and adapts a psychometric test into a format familiar to preclinical scientists. Designed to be used iteratively across a research project, it provides a simple reporting grade to document satisfaction trend over the research lifecycle.

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The copyright holder for this preprint is the author/funder, who has granted bioRxiv a license to display the preprint in perpetuity. It is made available under a CC-BY-NC-ND 4.0 International license.
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Posted September 25, 2018.
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Facilitating Patient and Public Involvement in basic and preclinical health research
James Maccarthy, Suzanne Guerin, Anthony G. Wilson, Emma R. Dorris
bioRxiv 425371; doi: https://doi.org/10.1101/425371
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Facilitating Patient and Public Involvement in basic and preclinical health research
James Maccarthy, Suzanne Guerin, Anthony G. Wilson, Emma R. Dorris
bioRxiv 425371; doi: https://doi.org/10.1101/425371

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