Biomedical research is being transformed through the application of information technologies
that allow ever greater amounts of data to be shared on an unprecedented scale. However…

Funding bodies have recently introduced a requirement that data sharing must be a
consideration of all funding applications in genomics. As with all new developments this condition …

Next-generation sequencing and global data sharing challenge many of the governance
mechanisms currently in place to protect the privacy of research participants. These challenges …

Advances in computing technology and bioinformatics mean that medical research is
increasingly characterized by large international consortia of researchers that are reliant on large …

… Jane Kaye, … Gibbons SMC, Kaye J, Smart A, Heeney C, Parker M (2007) Governing
genetic databases: Challenges facing research regulation and practice. J Law Soc 34: 163–189 …

With one million people treated every 36 hours, routinely collected UK National Health Service
(NHS) health data has huge potential for medical research. Advances in data acquisition …

There has naturally been a good deal of discussion of the forthcoming General Data
Protection Regulation. One issue of interest to all data controllers, and of particular concern for …

Biobanks are increasingly hailed as powerful tools to advance health research. The social
and ethical challenges associated with the implementation and operation of biobanks are …

A mutant of herpes simplex virus type 1 (HSV-1) in which glycoprotein H (gH) coding sequences
were deleted and replaced by the Escherichia coli lacZ gene under the control of the …

Biobanks can have a pivotal role in elucidating disease etiology, translation, and advancing
public health. However, meeting these challenges hinges on a critical shift in the way …